Listening to heal: the value of nurse-led support groups in Post-ICU recovery

Authors

DOI:

https://doi.org/10.60108/ce.384

Keywords:

Post-ICU syndrome, resilience, support groups, emotional recovery, psychological care

Abstract

INTRODUCTION: Post-ICU Syndrome (PICS) affects patients after they are discharged from the Intensive Care Unit, causing physical, cognitive and emotional sequelae. The lack of emotional support and the difficulty in social reintegration have prompted the exploration of strategies such as support groups.

OBJECTIVE: This study seeks to understand the experiences of post-ICU patients and evaluate the usefulness of nursing-led support groups in their emotional and social recovery.

METHODOLOGY: A qualitative phenomenological approach based on focus groups was used. Sessions were held with post-critical patients, nurses, doctors and psychologists, where experiences, feelings and perceptions about the recovery process and the impact of the support groups were analysed.

RESULTS: Patients reported anxiety, depression, guilt, frustration and loss of identity after their stay in the ICU. Immobilisation, disorientation and lack of communication with family members were factors of discomfort. Support groups facilitated emotional validation, reduced isolation and identity reconstruction, promoting resilience and positive coping.

CONCLUSION: Post-ICU support groups are a key therapeutic tool in the psycho-emotional recovery of patients. Their integration into post-critical follow-up is recommended to improve quality of life and facilitate social reintegration. Further research into strategies that complement the comprehensive recovery of these patients is needed.

Author Biographies

  • Fernanda Gil-Almagro, Enfermera. UNIE Universidad / Hospital Universitario Fundación Alcorcón

    Enfermera UCI. Doctora en CC. De la Salud por la URJC rama Psicología. Máster en Urgencias, Emergencias y Críticos; Máster en Educación Secundaria, Experto en Urgencias Extrahospitalaria. Instructora SVB, SVA e instructora en simulación. Autora de diversos artículos con factor de impacto Q1- Q2. Ganadora de premios de investigación por dos comunicaciones en congresos y por varios artículos publicados.

  • Cecilia Peñacoba-Puente, Enfermera

    Catedrática en la Facultad de Ciencias de la Salud de la URJC. Es doctora en Psicología por la UAM. Investigadora principal del Grupo investigador PERSANA. Ha liderado diferentes proyectos de investigación sobre Psicología de la salud, siendo la temática transversal a todos ellos Personalidad y salud.

    Ha dirigido más de una veintena de tesis doctorales y cuenta con más de 100 publicaciones, la mayoría en revistas de impacto en JCR. Filiación: Universidad Rey Juan Carlos.

  • Fátima Trinidad-Sepúlveda. , Enfermera

    Enfermera de la unidad Cuidados Críticos. Enfermera a domicilio y de residencia de mayores y personas dependientes. Experto universitario en prescripción enfermera. Cuidados de práctica avanzada en el control del dolor. Autora del libro La última mirada.

References

1. Needham DM, Davidson J, Cohen H, Hopkins RO, Weinert C, Wunsch H, et al. Improving long-term outcomes after discharge from intensive care unit: report from a stakeholders’ conference. Crit Care Med. 2012;40(2):502–9.

2. Raurell-Torredà MR, Arias-Rivera SR, Martí JP, Frade-Mera MR, Zaragoza-García IR, Gallart ER, et al. Grado de implementación de las estrategias preventivas del síndrome post-UCI: estudio observacional multicéntrico en España. Enferm Intensiva. 2019;30(2):59–71.

3. Cagino LM, Seagly KS, McSparron JI. Survivorship After Critical Illness and Post-Intensive Care Syndrome. Clin Chest Med. 2022;43(3):551–61.

4. Pant U, Vyas K, Meghani S, Park T, Norris CM, Papathanassoglou E. Screening tools for post-intensive care syndrome and post-traumatic symptoms in intensive care unit survivors: A scoping review. Aust Crit care Off J Confed Aust Crit Care Nurses. 2023;36(5):863–71.

5. Vester LB, Holm A, Dreyer P. Patients’ and relatives’ experiences of post-ICU everyday life: A qualitative study. Nurs Crit Care. 2022;27(3):392–400.

6. Olsen KD, Nester M, Hansen BS. Evaluating the past to improve the future - A qualitative study of ICU patients’ experiences. Intensive Crit care Nurs. 2017;43:61–7.

7. Haines KJ, McPeake J, Hibbert E, Boehm LM, Aparanji K, Bakhru RN, et al. Enablers and Barriers to Implementing ICU Follow-Up Clinics and Peer Support Groups Following Critical Illness: The Thrive Collaboratives. Crit Care Med. 2019;47(9):1194–200.

8. McPeake J, Hirshberg EL, Christie LM, Drumright K, Haines K, Hough CL, et al. Models of Peer Support to Remediate Post-Intensive Care Syndrome: A Report Developed by the Society of Critical Care Medicine Thrive International Peer Support Collaborative. Crit Care Med. 2019;47(1):e21–7.

9. Clarke R, Chow H, Kerrison K. An Intensive Care Unit peer support group: Participants’ views on format, content and the impact on recovery journeys. J Intensive Care Soc. 2023;24(3):258–64.

10. Rice DB, Thombs BD. Support Groups in Scleroderma. Curr Rheumatol Rep. 2019;21(4):9.

11. Almond H. Patient support groups are a lifeline for those with idiopathic pulmonary fibrosis. Lancet Respir Med. 2020;8(10):959–61.

12. Roberts G. The benefits of allergy patient support groups. Vol. 48, Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology. England; 2018. p. 1078–9.

13. Myers GM, James GD. Social support, anxiety, and support group participation in patients with an implantable cardioverter defibrillator. Prog Cardiovasc Nurs. 2008;23(4):160–7.

14. de Roda ABL, Moreno ES, Montero IV, Churnin S. Support groups and cardiac rehabilitation: effects of partner participation on anxiety and depression. Span J Psychol. 2014;17:E10.

15. Thompson DM, Booth L, Moore D, Mathers J. Peer support for people with chronic conditions: a systematic review of reviews. BMC Health Serv Res. 2022;22(1):427.

16. Lin F-H, Yih DN, Shih F-M, Chu C-M. Effect of social support and health education on depression scale scores of chronic stroke patients. Medicine (Baltimore). 2019;98(44):e17667.

17. Jablotschkin M, Binkowski L, Markovits Hoopii R, Weis J. Benefits and challenges of cancer peer support groups: A systematic review of qualitative studies. Eur J Cancer Care (Engl). 2022 Nov;31(6):e13700.

18. Nakao S, Kamo T, Someko H, Okamura M, Tsujimoto Y, Ogihara H, et al. Peer Support for Patients With Heart Failure: A Systematic Review and Meta-Analysis. Cureus. 2023;15(10):e46751.

19. Rosa RG, Ferreira GE, Viola TW, Robinson CC, Kochhann R, Berto PP, et al. Effects of post-ICU follow-up on subject outcomes: A systematic review and meta-analysis. J Crit Care. 2019;52:115–25.

20. Harvey MA, Davidson JE. Addressing the Consequences of Our Success. Vol. 47, Critical Care Medicine. 2019. 146–7.

21. Molina Escribano F, Castaño Moreno E, Massó Orozco J. Experiencia Educativa con un Paciente Experto. Rev Clínica Med Fam. 2008;2(4):178–80.

22. Giorgi A. The Theory, Practice, and Evaluation of the Phenomenological Method as a Qualitative Research Procedure. J Phenomenol Psychol. 1997;28(2):235–60.

23. Berenguera A., Fernández de Sanmamed MJ, Pons M., Pujol E., Rodriguez D., Sarua S. Escuchar, observar y comprender. Recuperando la narrativa en las Ciencias de la Salud. Aportaciones de la investigación cualitativa. 1a. Institut Universitari d´Investigació en Atenció Primaria Jordi Gol (IDIAP J. Gol), editor. Barcelona: Lacontragrafica.com; 2014.

24. Palacios-Ceña D, Corral Liria I. Fundamentos y desarrollo de un protocolo de investigación fenomenológica en enfermería. Enfermería Intensiva. 2010;21(2):68–73.

25. Ramnarain D, Aupers E, den Oudsten B, Oldenbeuving A, de Vries J, Pouwels S. Post Intensive Care Syndrome (PICS): an overview of the definition, etiology, risk factors, and possible counseling and treatment strategies. Expert Rev Neurother. 2021;21(10):1159–77.

26. Hiser SL, Fatima A, Ali M, Needham DM. Post-intensive care syndrome (PICS): recent updates. J intensive care. 2023;11(1):23.

27. Lee M, Kang J, Jeong YJ. Risk factors for post-intensive care syndrome: A systematic review and meta-analysis. Aust Crit care Off J Confed Aust Crit Care Nurses. 2020;33(3):287–94.

28. Vrettou CS, Mantziou V, Vassiliou AG, Orfanos SE, Kotanidou A, Dimopoulou I. Post-Intensive Care Syndrome in Survivors from Critical Illness including COVID-19 Patients: A Narrative Review. Life (Basel, Switzerland). 2022;12(1).

29. Lobo-Valbuenaa B, Sánchez-Rocab M., Regalón-Martínc MP, Torres Moralesd J, Varillas Delgadoe D, Gordo-Vidal F. Síndrome post-UCI: Amplio espacio de mejora. Análisis de los datos tras un año de implementación de protocolo para su prevención y manejo en un hospital de segundo nivel. Med Intensiva. 2021;45(8):e43–6.

30. Luz LFDS, Santos MCD, Ramos TA, Almeida CB, Rover MC, Dal’Pizzol CP, et al. Delirium and quality of life in critically ill patients: a prospective cohort study. Rev Bras Ter intensiva. 2020;32(3):426–32.

31. Jones C, Griffiths RD, Humphris G. Disturbed memory and amnesia related to intensive care. Memory. 2000;8(2):79–94.

32. Kalisch R, Müller MB, Tüscher O. A conceptual framework for the neurobiological study of resilience. Behav Brain Sci. 2015;38:e92.

33. Bartone PT, Eid J, Hystad S W. Training hardiness for stress resilience. In: Military Psychology: Concepts, Trends and Interventions. Sage, New Delhi; 2016. p. 231–48.

34. Zager Kocjan G, Kavčič T, Avsec A. Resilience matters: Explaining the association between personality and psychological functioning during the COVID-19 pandemic. Int J Clin Health Psychol. 2021;21(1):100198.

35. Mathieu A, Reignier J, Le Gouge A, Plantefeve G, Mira J-P, Argaud L, et al. Resilience after severe critical illness: a prospective, multicentre, observational study (RESIREA). Crit Care. 2024;28(1):237.

36. Huang C, Xie J, Owusua T, Chen Z, Wang J, Qin C, et al. Is psychological flexibility a mediator between perceived stress and general anxiety or depression among suspected patients of the 2019 coronavirus disease (COVID-19)? Pers Individ Dif. 2021;183:111132.

37. Wade DF, Moon Z, Windgassen SS, Harrison AM, Morris L, Weinman JA. Non-pharmacological interventions to reduce ICU-related psychological distress: a systematic review. Minerva Anestesiol. 2016;82(4):465–78.

Additional Files

Published

2026-01-29

Issue

Section

Estudios originales

How to Cite

Listening to heal: the value of nurse-led support groups in Post-ICU recovery. (2026). Conocimiento Enfermero, 9(31), 7-22. https://doi.org/10.60108/ce.384